Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

April is Autism Awareness Month

with 12 comments

Logo of World Autism Awareness Day, April 2, b...

Logo of World Autism Awareness Day, April 2, by UN (United Nations). Português: Logo do Dia Mundial de Conscientização do Autismo, 2 de Abril, criado pela ONU (Organizações das Nações Unidas). (Photo credit: Wikipedia)

I get it: you’re aware.  I’m aware too.  There probably isn’t a single day goes by that we’re not aware.

You’re also probably aware, no doubt, of the latest (and by latest, I mean from 2008) statistics from CDC about 1 in 88 children in the U.S. now identified as having an autism spectrum disorder.

Reports like these always generate a lot of media attention, asking lots of questions, though perhaps not always the most important ones.

This time last year, I wrote:

“…I wanted to let the readers know that 1 in 110 is not just a number.  That number is a person.  In our case, that kid is mine.”

Nothing has changed this year.  1 in 88 is still not just a number.  That kid is still mine.

We live on a different continent now, our lives have changed, and continue to change a great deal.  But the one thing I remain ever conscious of, perhaps now more so than last year, is the need for awareness.

Pudding was recently turned down from a school, because of autistic traits she displayed during the assessment period.  If there is a place anywhere in the world that can exclude my child because of the way her brain works, I need to keep doing my bit for autism awareness.

We’ll find somewhere else for Pudding, where she will be welcomed and valued.  She is one of the lucky ones.  That there are families here who don’t have access to an appropriate education for their autistic children breaks my heart.

That there are still autistic children and adults in this world who are abused and mistreated reminds me to never stop doing my bit for autism awareness.

A year had changed Pudding in many ways.  She is growing, changing, developing all the time.  She is expressing herself a little easier, and advocating for herself in small but important ways.  She is 1 in 88, and she is mine.  It is never about the numbers, it is always about the people.

I know that we need more than awareness, but it is the place we have to start.  Five years ago when the first World Autism Awareness Day took place, I held my infant who would stare up at a ceiling fan for comfort.  I didn’t understand.  We saw pediatricians who didn’t understand.

I needed awareness, I needed accurate information and appropriate interventions.  I needed to learn to understand how best to support my daughter.

One day, Pudding will learn she is part of this 1 in 88.  But every day, I’ll let her know she is one in a million.  She is mine.

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Written by Spectrummy Mummy

April 2, 2012 at 2:23 pm

12 Responses

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  1. My eyes are blurry….This is beautiful. I can feel your love for your daughter….

    Lisa

    April 2, 2012 at 2:28 pm

  2. I love your post. There was a time when we didn’t share that Jacob had Asperger’s with anyone, but then a tragedy thrust us into the spotlight. And then it seemed that everyone in my neighbourhood knew that Jacob had an ASD, so we had no choice but to talk about it. Now all my frineds like to talk about autism and with the 1:88 ratio, it’s becoming more and more likely that everyone we know is somehow affected by an ASD. It makes me feel special and lucky that my son is 1 of the 88.

    Jim Reeve

    April 2, 2012 at 4:17 pm

  3. One in a million. Just like her mom.

    akbutler

    April 2, 2012 at 4:40 pm

  4. This brought tears to my eyes! So beautiful! It is about more than numbers, and yes, unfortunately, there is still SO much work still left to be done in the awareness campaign.

    Patty

    April 2, 2012 at 5:23 pm

  5. […] April is Autism Awareness Month (spectrummymummy.com) […]

  6. Well said. x

    Di

    April 2, 2012 at 6:42 pm

  7. […] April is Autism Awareness Month (spectrummymummy.com) […]

  8. […] Excerpt from: April is Autism Awareness Month « Spectrummy Mummy […]

  9. […] April is Autism Awareness Month (spectrummymummy.com) […]

  10. One and all recognizes April 1st as April Fools Day. But to me it is notably different as it is the start of Autism Awareness month. You see since this week’s revelation that 1 in 88 American children has an autism spectrum disorder (ASD) I think the populace is going to take more note to this cause. As April passes and you start to see more autism awareness products like bracelets and magnets please take the time to study more about this issue that faces many, many families around the world.

    Hofford@hotmail.com

    April 3, 2012 at 3:04 am

  11. You remind me that the whole world still needs awareness. Such a poignant example with what has happened to your darling little Pudding in a country so far away from the United States. You also remind me how little the medical profession understands autism – even though – if anyone – they should, to make a correct and early diagnosis. Awareness is far from a foregone conclusion and won’t be for a long time to come. So yes, I’m be with you in continuing to inform. xox

    solodialogue

    April 3, 2012 at 3:36 am


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