Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

O is for Onwards

with 9 comments

Onwards.  Moving on.  That sounds easy, doesn’t it?  The truth is, moving on gets easier the more you move on.  There will always be bumps in the road, hitches along the way, but once you start the momentum, it gets easier.  Somehow, bouncing back gets easier the more bounce you have.

A little over a year ago, I wrote this post lamenting that a school wouldn’t accept Pudding.  It was the first time she’d been rejected because of her autism, and I was crushed.

We are about two and a half years from the time Pudding was first diagnosed with an autism spectrum disorder.  In the early days, I wouldn’t have been able to move on from such a rejection.  I’d have taken one person’s opinion as proof that the world will always be an unwelcoming place for my girl.

Even last year, I took that initial rejection as a defeat.  Now…it is a negotiation.  If a school can’t accept my child, they need to say why.  We can find a way to provide support, if they can provide acceptance.  If a school can’t, or if fear of Autism is the only reason for exclusion, it isn’t a place that looks at a child as an individual.  It probably isn’t a good place for any child.  Certainly not for mine.

I’ve been thinking about this as I talked to a friend about how I was beginning to feel uncomfortable in the direction an online support group had turned.  I appreciate that, like the autism community as a whole, this support group is divided.  I don’t expect everyone to hold the same opinion as I do, but I find it increasingly hard to read about autism depicted as a disease.  Or to hear about expensive and untested treatments as the epitome of being a “warrior mama.”

I’m not a warrior.  I don’t need to fight a battle.  We are diplomats, finding a way to negotiate the obstacles that we face.

We can’t expect schools, and society as a whole to include and accept our children, if we as parents aren’t ready to do that as well.  Like many other parents, in the early stages I found my daughter’s diagnosis was overwhelming.  I grieved for the loss of a life I expected to live, and struggled to accept the changes that would come our way.  I was stuck.

But all along, right in front of me, was a child who was always developing, just in a different way to what we expected.  Once I realized that she was moving on- I could do that too.  I didn’t need to hold on to grief.  I didn’t need to find radical ways to eliminate autism from my child.  She isn’t broken, or diseased.  She is human, whole, happy.  She is loved.

Pudding has taught me a lifetime of lessons in her 5 years on this planet, but most of all, she teaches me to keep going.  To let nothing stop us- to always find another way.  Now the very doors of a school that were once locked to us, are wide open in welcome.

There is another way, and we’ll find it together.  We just have to keep moving onwards until we get there.

This post is part of my A-Z series.  You can find the rest of the entries by clicking >here<.

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Written by Spectrummy Mummy

May 29, 2012 at 2:37 pm

9 Responses

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  1. O is also for outstanding. It can be very hard as a parent to let go of certain things, but it’s funny how having a child with an ASD can actually help you learn to let go. And you’re right that if a school is unmilling to accept a student just because they have autism, then it’s definitely not a good school for any child. Imagine telling Dr Asperger that he wasn’t allowed to attend their school. It would definitely be their loss.

    Jim Reeve

    May 29, 2012 at 2:50 pm

  2. Miss E has taught me more about resilience in her 9yrs than I’ve learned in the previous 38 yrs and that’s despite my having been born a marine brat who moved on average every couple of years. To paraphrase another far wiser than me, I wouldn’t change my daughter for the world, though I would gladly change the world for my daughter. ❤

    Lollipop

    May 29, 2012 at 3:01 pm

  3. Brilliant beautiful post. As always.

    akbutler

    May 29, 2012 at 3:04 pm

  4. I agree completely.

    Stimey

    May 29, 2012 at 3:23 pm

  5. I love this! What a great way to look at it…onwards we go!

    Lisa

    May 29, 2012 at 3:44 pm

  6. You have your head screwed on just right! 🙂 This is an amazing post and I agree with you wholeheartedly. I am not a warrior mum but I am a gatherer… and unfortunately my gathering backfired! Let’s hope it is only a minor glitch! Thanks for your support! Onwards, upwards and forwards we go! x

  7. I couldn’t agree more – what a practical and positive point of view. My son is my inspiration – he has taught me to not make assumptions and to let go and let him try things, even if I don’t believe he can do it. I owe him at least the chance to try and more often than not he proves me wrong!

    I am a long time reader and subscriber who comments rarely but i do enjoy every post. Thanks for sharing your story.

  8. […] know how I recently said that I’m not a warrior mama?  Perhaps I just wasn’t a good one.  I’ve spent the last three years battling a lack […]

  9. so wonderfully said!

    outrunning the storm

    June 7, 2012 at 3:43 pm


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