Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

Posts Tagged ‘body language

Gestures

with 6 comments

We were traveling in the car to a village called Clarens for the weekend.  The kids’ grandparents have been visiting, and Spectrummy Daddy thought his parents would like to go to this artists’ haven in a valley in the Free State surrounded by mountains.  I agreed, because I thought is sounded like heaven for all of us.  It was.

But we were late setting off.  I had a work event that day which included Spectrummy Daddy getting hit in the face with a whipped cream pie (I have a weird job).  The event had run late, and then with picking up the kids and getting stuff ready for a weekend away…later still.

We finally set off and hit all the rush hour traffic.  I was getting panicky, because much as Johannesburg has street lights and paved roads, that wasn’t going to be the case where we were headed, and this just isn’t a safe country to be driving at night.  Especially with all the men-folk in a different car with the GPS.

Actually, we did have Cubby with us in the beginning, though I’m not sure he counts as a man yet.  He wanted to be in the girls’ car at least.  As we crawled along in the traffic, I noticed Pudding was the wrong kind of quiet.  I looked back and her face confirmed what evidence supported a few seconds later: she was car sick.

Pudding has been car sick a few times before, but this was bad, and it was already getting dark.  We found a small shopping center off the motorway, cleaned up as best we could, changed clothing, and allowed Cubby to switch back to the boys’ car, which had become much more appealing by virtue of being vomit-free.

Traffic was even worse as we got back onto the motorway.  We inched along, and with cars cutting in and out, were positioned further away from Spectrummy Daddy and the rest of the gang in the boys’ car.  I was trying my hardest to keep their car in sight.  I knew how vulnerable we were without a GPS, especially as it got darker and harder to navigate.

I was more concerned with Pudding getting sick again, and kept checking my mirror to see that she was still okay.  I barely had time to react as a white car swept in from the side, almost hitting mine in his attempt to enter the motorway.

I was furious.  Already upset from the turn our trip was taking, this car had almost caused us an accident before we’d even left the city limits.  But feeling vulnerable already, I tried to keep the road rage in check, I brought the car to a halt so it could enter in front of me without hitting.  I didn’t need to lose what was left of my cool. 

But the man in the white car had turned back to me and was gesticulating, but I didn’t understand what he was saying.  He is saying words too, but I can’t hear them, and the movement of his lips means nothing to me.  I doubt he is speaking English.  

Then he started clapping at me…but slowly.  The hairs on the back of my neck were raised.  He is starting something!  We’re stuck in this traffic, and this guy is trying (and succeeding) to intimidate me!

Or is he?

I can’t understand his gestures AT ALL.  Is he being apologetic?  Does he feel bad that he almost crashed into us and is saying so, but there is a cultural divide?  Is it possible that the slow clap could not be sarcastic?  And a woman is in the passenger seat, maybe I’m getting this wrong.

So I don’t react at all.  I don’t smile.  Or nod.  I don’t shake my head.  I keep my eyes focused ahead as though I’m oblivious.  The traffic is bumper to bumper and not much safe space to manouever myself anywhere, but if he stops, if he is going to get out of the car to hurt us, I’ll pull off onto the hard shoulder and speed my way around.  I’m mentally prepared for highjacking.

But for now, I just need to remain calm and alert.  I don’t need to overreact.

Yet this man seems desperate for my reaction.  He won’t stop with his gesturing and clapping.  Then his wife gets involved, doing the same thing.  And it is dark, and I’m not sure where I’m going, and my kid is sick, and I can’t see my husband’s car, and I’m scared and WILL YOU PEOPLE JUST STOP TRYING TO PROVOKE ME???!!!

And then the wife works it out.  I don’t understand!  So she tries a different gesture, and I breathe a sigh of relief as she chooses a thumbs-up sign, one that even a white western woman like me would be able to understand.  

And I do.  With a large smile I return the symbol, and the man and his wife do the same and we are all smiles and thumbs and nobody gets hurt.  We move on.  Slowly.

We crawl on into the traffic and a night that gets darker and darker.  I have hours of driving to reflect on the incident with the white car and my reaction to it.  I wonder if this is how it can be for Pudding- when you struggle to understand body language and gestures, when communication is both basic and foreign at the same time, does she feel this afraid?  Does she misinterpret smiles as threats?  If an olive branch looks like a loaded gun- how do you ever trust this world enough to make relationships in it?  I’m profoundly aware, once again, that if I faced Pudding’s challenges, I would be curled up in a corner and refusing any interaction.  She takes my breath away with the simplest of actions.

When we finally get there, it is Pudding’s turn top be anxious.  She won’t let me go out of sight in this unfamiliar place.  I try to calm her with my words, and then abruptly realize that she won’t be able to interpret them if she is already feeling vulnerable.

So we climb into bed together, and I offer her my hand.  She recognises the gesture, and moments later falls asleep, her hand still holding mine.  One sweet gesture at least, we both share and understand.

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Written by Spectrummy Mummy

April 15, 2013 at 2:41 pm

No words necessary

with 5 comments

How Pudding says shh

I’ve been reading lots of articles and posts lately about labels, and the conflict that can arise from using the wrong one.  For instance: does a person have autism, or are they autistic, as the author of this blog prefers?  As a former carer and current spectrummy mummy, I’ve always preferred to use the ‘person-first’ approach, but in the case of autism, or even Autism, if you prefer, it doesn’t personally bother me.  It is certainly an interesting debate, and sometimes the words themselves are less important than the intent behind those using them, and the reaction of those receiving them.  I’ve even written posts myself about my reactions to certain phrases, such as “short bus” or “good enough mother“, where my interpretation of the words doesn’t follow the usual pattern.  So words can be extremely powerful, but so can other kinds of communication.

Non-verbal communication is a challenge for people with autism spectrum disorders.  When you consider how much we communicate through our bodies, our clothes, our posture, our gestures, and (sigh!) eye gaze, it is a wonder we need to use words at all.  We do, of course, or I wouldn’t waste my breath encouraging my kids to ‘use their words’ at their every frustration.

At the advice of Pudding’s speech therapist, I recently bought a DVD teaching young kids about sign language to use with Cubby.  Every word they use he already knows, but he is nonetheless enthralled, and attempts the signs, and also has started gesturing along with songs such as ‘wheels on the bus’ that use finger plays or actions.  And because her school is out for summer, Pudding has been involved too.  Something pretty amazing is happening- she is paying attention.  Not just to the DVD, or music, but paying attention to what I’m doing with my body and trying to figure out what it means.  I’ve indulged in times with her when I’m completely silent, and she has to figure out my meaning without words.*  Instead of getting angry, which I was certain would be the case, she enjoys it.  And there’s more.  Her language has had a little boost.  Her eye gaze has improved.  But more importantly, her interactions have increased too, not just with me, but Daddy, her therapists, and most significantly of all: her brother.

I’m almost afraid to write of progress.  Pudding’s development is like climbing a pole, such hard work to move up, and so easy to slide back down again.  Also, I broke the sage advice of Dr. P of only trying one new therapy or intervention at a time, so I can’t say for sure what is causing this progress.  But, hey, this is progress.  I’m allowed to have a little celebration when it happens.

I went to the coffee shop with the kids yesterday.  I was positively reinforcing (not bribing, who said that?) the kids with juice boxes and snacks.  The kids were well behaved.  And by that, I mean that they were contained to one area, not playing with the door, not running into people, not pouring drinks, and smearing sugar and milk, and the myriad of other things they would do if left to their own devices.  They were still pretty loud and fidgety though.  The lady sitting close by trying to read her book gave a frown our way, indicating non-verbally, that we were disturbing her.  But Pudding communicated by flapping her hands that she was happy, and Cubby by dancing (to his own music), so I didn’t feel the need to move on.  And then, one of those rare instances of a genuine smile from another customer.  She was telling me it was okay, my kids were okay.  No words were necessary to tell me that, but it is a communication I always treasure.

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Written by Spectrummy Mummy

August 27, 2010 at 7:12 am