Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

Posts Tagged ‘gfcf diet


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I didn’t want to go home.  I was enjoying the warm sunshine on my vitamin D-ficient body.  Knowing that although it was unusually cool for Florida, it was a heck of a lot warmer than where we live.  I liked having easy access to the just-right stimulation my kids enjoy, and the relative ease of finding food they could eat.  I like outnumbering the kids with adults, and all the extra help that means.  But most of all, because I only get it once a year these days, I loved the feeling of contentment of having the people I love most in the same place.

I didn’t want to go home, so I was pretty sour the last day.  I mooched around with a petulance that isn’t very becoming in a 32 year-old woman.  We finally got into the car on Saturday morning and set off.  I didn’t cry, because of the whole British stiff upper lip thing that is my genetic inheritance, but my heart was heavy, and I felt every one of the miles we drove along.

We split the trip into two days.  I cursed yet again that we’d forgotten the laptop, because over 5 nights we stayed in 5 different places, and that is a bit much for anyone.  We could have used a social story right here.  But Pudding and Cubby handled it like troopers, and even slept well in yet another strange place.

Yesterday we set off on the road again, and the rain just didn’t quit.  It was much colder now too, and miserable as we were to return, we referred to the gloomy weather as our winter of discontent.  The drive was punctuated just by the odd stop for food that I hoped rather than believed was GFCF, and gas (petrol) station bathrooms so disgusting that I saw colonies of a new species of fly.

Still we drove.  Right after the last big city, and usual source of traffic jams, we stopped to fill the tank.  Silently congratulating ourselves for the good time we were making- just over 1 1/2 hours form home.  No sooner were we back on the road again, when a warning light came on the dashboard, and we discovered a tyre that looked as flat as I felt.  At this point, you would do well to picture me with a raised fist, cursing the gods.  My plan, such as it was, to get the kids home and fed before dark evaporated.  And now there would be no time to get shopping for Pudding’s school lunch tomorrow.  We waited for the roadside assistance people and then frantically tried to find a tyre place in small town America on a Sunday which also had our tyre in stock.  We found it, but they were very busy, and couldn’t give us an estimate on how long it would take.  We could wait in their office (oh hell no!) or see what was open in the strip mall across the street.

Cold, wet, and wind-battered, we found a grocery store that looked thoroughly unpromising.  I’d never heard of the chain before, and I didn’t expect much from it.  I’ve never been so pleased to be wrong.  They had the largest selection of gluten-free foods I’d ever seen in the state we live in.  This place had more bread than Whole Foods, including the brands the kids had eaten at Disney.  We stocked up on pretzels and animal crackers, and made sandwiches in the store’s attached bakery.

I’m not sure I believe in kismet, but it does seem like we landed in the right spot.  Just in case it was our destiny to stop there, we also bought a lottery ticket.  We returned to the car and after a while it was fixed and good as new.  Almost four hours after the flat, we were back on our way again.

The adversity really changed our minds about the trip though.  Now we were longing to get home, and were thrilled to get the rest of the way without any hitches.  Spectrummy Daddy drove, Cubby slept, Pudding perseverated on a Sesame Street DVD, and I mused about the way something that first appears to be a mild catastrophe can make you truly appreciate your fortune.  Sometimes the universe knows the perfect way to change your perspective.

Written by Spectrummy Mummy

December 13, 2010 at 7:33 am

Okay at the Panera cafe

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On Wednesday Spectrummy Daddy came home from work an hour early so he’d have time to pack before going away.  We’d been to Pudding’s occupational therapy session, so we picked him up from the metro station on our way back.  I hadn’t made anything for dinner, so we made a spur of the moment plan to go out for dinner.  Does that last sentence fill you with dread?  Many kids don’t do well with spur of the moment decisions, but as long as it is something she wants to do, Pudding is very amenable.

Yes, she wanted to go out for dinner.  I gave her the option of the two closest places: Panera* or a diner.  She opted for Panera, or as she calls it- Panera cafe. I think it reminds her of when we were living in Europe and enjoying the cafe-culture.  When we first moved back to the US, we would go to Panera about once a week.  Her former OT, Miss M., worked at a pediatric practice housed in the same building, so we’d always have lunch together there afterwards.  She would always get a sandwich with yoghurt, before we knew that Pudding was allergic to wheat and dairy.  As you can imagine, a bakery is not the best option for someone with a gluten intolerance, so we stopped going.  She kept asking to go there, so I emailed them and they replied that the black bean soup was safe for her.  With some explanation that we  could only eat there if she ate that soup and an apple (plus gluten-free bread from home), we have been able to return a couple of times.

We find a table and get settled in.  Spectrummy Daddy and Pudding went to place the order, but he quickly returned with a grim look on his face.  No black bean soup today.  By his delivery and my sharp intake of breath you’d have been forgiven for thinking he’d made a much more grave discovery.  Our girl who likes those spur of the moment decisions when she gets something she wants, really does not like them when something she wants is taken from her.  She also has no qualms about letting the public in on her feelings.  I braced myself to tell her the news.

Me- Honey, they don’t have your soup here today.  We need to leave to go to the diner.

Pudding- Don’t want to go to the diner.  Want to stay at Panera cafe.

Me- I know, but they don’t have soup for you to eat.

Pudding- Want to eat a sandwich.

Me- You can’t eat a sandwich here, Mummy didn’t bring the bread you can eat.  Let’s go to the diner, and you can eat there and have…(I racked my brains for some kind of treat)….a juice.  Is that okay?

I know, juice.  Not exactly inspired.  Offering something she could just as easily have there is not the greatest of incentives.  But I was out of ideas.  My bag was empty of treats to bribe her, and I couldn’t think of anything else on their menu she’d want that she wasn’t allergic to.  So you can imagine my surprise when she replied:

That okay.

And just like that, we left.  With no meltdown, no fuss, no drama, no whining.  We’re making steps here, this wouldn’t have happened six months ago.  We ate at the diner and hugged Daddy before he left, eventually went to sleep, and slept through the night.  How was that?  That okay.

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Written by Spectrummy Mummy

October 11, 2010 at 7:44 am

Wordless Wednesday Oct 6 10

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Written by Spectrummy Mummy

October 6, 2010 at 5:56 am

I want to tell you…

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“I want to tell you

my head is filled with things to say

When you’re here

all those words they seem to slip away”

Harrison, George.  “I Want to Tell You”.  Lyrics. The Beatles “Revolver” Capitol Records, 1966.

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Written by Spectrummy Mummy

July 29, 2010 at 6:55 am