Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

Posts Tagged ‘s’mores

Less is s’mores

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So I’ll begin where I left off, with the graham crackers.  For those of you reading from across the pond, the closest match I can come up with for a graham cracker is a digestive biscuit, with a bit of honey and cinnamon.  You can just eat them as they are, but they are often used in desserts like key lime pie, which tastes like my honeymoon.  They are famously (well, in America) used to make s’mores.  S’mores are a graham cracker sandwich of toasted (preferably on a camp fire) marshmallow and chocolate.  They are delicious, or s’moreish as I like to say.  Eating s’mores is one of those quintessentially things you do as an American kid.  Pudding’s preschool autism class is doing a camping theme, with s’mores.  And if I lived an ordinary life, that would be the end of it.

Pudding is allergic, sensitive, or intolerant to gluten, dairy, potatoes, rice, carrots, beef, green beans, eggs, fish, cashews and peanuts.  We are new to this discovery, and there are likely to be more foods she can’t eat.  All the stuff you can buy that is gluten free has dairy, or rice, or potatoes in.  So you can’t buy ANYTHING that is pre-made and you have to make EVERYTHING from scratch.  When I say “you” I just mean me, of course, because I’m yet to encounter anyone with a kid with this many food allergies, though I’m sure such souls do exist.

Maybe one day I’ll get around to telling you about there being a sizable sub-section of the ASD population with food allergies/sensitivities/intolerances, and that a diet removing the proteins in wheat and milk has been helpful for some children.  How there is a whole industry springing up around this, for better or for worse.  How I think all these allergies are created by the food industry.  I’ll get around to telling you about what we found with Pudding, but it is an ongoing saga, and I really need to stick to those damn graham crackers.

I know you’re probably wondering why I don’t just give her something else to take to school instead.  I could, of course.  She may not notice, she probably wouldn’t even care if she did.  She seems to like her graham crackers without the chocolate and marshmallows spoiling them, so not having s’mores is not going to be a big deal for her.  So many things are a big deal for her, so many things are going on right now, that it seems ridiculous that I would consciously create my own big deal.  That is exactly what I did yesterday.

So, why?  Well, part of it is because I have a little bit of guilt that we live our nomadic lifestyle.  That our kids don’t get to have the same experiences as other kids.  Don’t get me wrong, they’ll have other, amazing experiences, but they often seem to miss out on the more mundane things.  We just have one year left of being a (half) American girl living in the USA.

Secondly, in a world where she and her school friends are the odd ones out, I don’t want her to be left out.  I too had allergies as a kid, and remember being banished from the cafeteria when the offending food was served.  Clearly her beloved teacher Ms. S is not about to banish her, but being marginalized in a special ed class is the kind of thing they write country songs about.

Thirdly, during my extensive web-based research (really, I need a doctorate for all my studying this last year) I came across an alarming link between anorexia nervosa and girls with Asperger’s Syndrome.  I know, I know, that I’m worrying about that too early for a girl who has always been over 95th percentile on the growth charts, but I can’t remove these pieces of information once they get in my brain and they twist and turn themselves around until they become legitimate fears.  We’re starting to see more control and choosiness over her food that may be a result of the restrictive diet and those stupid allergies.

I thought I’d turn it into one of those fun, crafty-do-it-together things that are fine for other people, but quickly degenerate over here.  I’d bought some teeny-tiny animal cutters that were adorable, but impossible to use.  So Pudding used a gingerbread man cutter, and I used the animal cutters.  Next came what we take as conversation, but others might be more inclined to call monologuing (yes, that is a word, it was in The Incredibles).

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Written by Spectrummy Mummy

July 30, 2010 at 9:04 am