Spectrummy Mummy

Asperger's, Allergies, and Adventures Abroad

Posts Tagged ‘Volunteering

First Aid

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Last week, I went along with the Consul General and the Community Grants Coordinator for a ceremony to mark the handing out of the very first Autism South Africa First Aid Kits.  I got to introduce my boss to the dedicated team that brought this idea to fruition.  We also toured an inner-city school for children on the spectrum.  I was immediately recognized by a member of staff as Pudding’s mother- she is such a superstar!

These First Aid kits are packages that Autism South Africa will send out to communities and schools in need to support their autistic learners.  It isn’t an autism unit in every school.  It isn’t specially trained teachers and therapists such as the wealthier amongst us can afford.  This is the most basic toolkit for those with nothing else, for true communities in need: rural, isolated, impoverished.

We got to meet some of the recipients of these kits, and I don’t know how I managed not to shed a tear as they talked about how tools as simple as a laminator and velcro were going to change the lives of children there.  Each kit contains strategies and tools, with a guide to producing developmental toys with limited resources and no impact to the environment.

The US Mission to South Africa provides the Self-Help grant that funds 80 of these kits, but the impact of these strategies is beyond measure.

Beyond measure…just like the potential of those given the right support.  This first aid may not be saving lives, but it is definitely changing them…for the better.

Written by Spectrummy Mummy

November 20, 2012 at 5:25 pm

Shining a Light (at Hopeful Parents)

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This post was originally published at Hopeful Parents.  You can read it there by clicking below:


Hopeful Parents

I’ve been volunteering for Autism South Africa since I visited their offices a few months ago.  Unfortunately, the financial difficulties the organization was experiencing then have become even more pronounced.  There is no government support.  Donations are dwindling.  Existing sources of revenue are drying up.

There is the great dilemma- should you continue to push for awareness in a country where autism is under-diagnosed and misunderstood, knowing that it is already impossible to provide adequate assistance?

The one thing they desperately need- more money- I’m unable to bring.  I couldn’t help but feel helpless.

And yet that morning…

  • In walked a student from the local university looking for further information about autism spectrum disorders.
  • An educator is travelling around the country providing workshops for parents, therapists and teachers.
  • A therapist stopped by and asked to be added to the mailing list for more information about autism workshops.
  • The mother of a newly diagnosed child was able to walk in and collect information about autism in her own language, and given direction about the next steps.
  • Another concerned parent could call in and schedule an appointment for a full assessment free of charge.

The staff continue to work on ways to help everyone affected by autism in South Africa has access to the support and services they need, regardless of the current situation.

Following a phone call in which a father asked, “Is there any hope?” following the recent diagnosis of his child, the member of staff who took the call turned to me and said he wasn’t sure how to respond to that question.  He asked me how I would have replied.

There is always hope.

When there is nothing left to give, hope is the one thing you can give.  We hopeful parents know that.  A cause is never hopeless as long as there are people trying to find it.  I don’t feel helpless any more.  I described my first visit to the office as a flood, but now I know better.  It is a lighthouse.  In these dark times, Autism South Africa is still shining a light.  Now all that remains is to make that beacon brighter.

Written by Spectrummy Mummy

January 19, 2012 at 2:15 pm